Parental perception of facilitators and barriers to activity and participation in an integrated tele-rehabilitation model for children with cerebral visual impairment in South India – A virtual focus group discussion study

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dc.contributor.authorPhilip, Janneten_US
dc.contributor.authorHussaindeen, Jameel Rizwanaen_US
dc.contributor.authorJacob, Namitaen_US
dc.contributor.authorSethuraman, Saranyaen_US
dc.contributor.authorSwaminathan, Meenakshien_US
dc.date.accessioned2023-08-25T06:36:07Z
dc.date.available2023-08-25T06:36:07Z
dc.date.issued2023-02
dc.description.abstractPurpose: This study utilized virtual focus group discussions to document the facilitators and barriers reported by the parents as part of the tele?rehabilitation service delivery model in India. Methods: This study included 17 participants who were enrolled into the Tele?rehabilitation program (16 mothers, 1 father) and the virtual focus group discussion (V?FGD) were conducted through a WhatsApp video call. Three V?FGDs were conducted involving two moderators and a note taker. The V?FGD, focused at extracting the perceptions of parents pertaining to facilitators, barriers and coping mechanisms to barriers related to the tele?rehabilitation model. Results: Thematic analysis resulted in four themes for barriers that included: family and support, time, parent and care taker, child and place of living related; facilitators reported included: continuous monitoring, accessibility to professional services, provision of resource materials and parental empowerment. Themes “family and support” and “child” were most reported by parents with children >3 years and ?3 years respectively. Finally, the barriers and facilitators were aligned with the chapters and codes of International Classification of Functioning, children and youth version (ICF?CY) environment and personal factors. Conclusion: This V?FGD highlights the importance of parental?centred and structured Tele?rehabilitation among children with CVI in India. The outcome of this study opens avenues for creating effective intervention.en_US
dc.identifier.affiliationsGraduate Research Scholar, Elite School of Optometry Affiliated to SASTRA Deemed to be University, Thanjavur and Sankara Nethralaya, Unit of Medical Research Foundation, Chennai, Tamil Nadu, Indiaen_US
dc.identifier.affiliationsBinocular Vision and Vision Therapy Clinic, Sankara Nethralaya, Unit of Medical Research Foundation, Chennai, Tamil Nadu, Indiaen_US
dc.identifier.affiliationsDirector – Chetana Charitable Trust, Chennai, Tamil Nadu, Indiaen_US
dc.identifier.affiliationsVision Enhancement Clinic (VEC), Unit of Medical Research Foundation, Chennai, Tamil Nadu, Indiaen_US
dc.identifier.affiliationsSenior Pediatric Ophthalmologist, Sankara Nethralaya, Unit of Medical Research Foundation, Chennai, Tamil Nadu, Indiaen_US
dc.identifier.citationPhilip Jannet, Hussaindeen Jameel Rizwana, Jacob Namita, Sethuraman Saranya, Swaminathan Meenakshi. Parental perception of facilitators and barriers to activity and participation in an integrated tele-rehabilitation model for children with cerebral visual impairment in South India – A virtual focus group discussion study. Indian Journal of Ophthalmology. 2023 Feb; 71(2): 601-607en_US
dc.identifier.issn1998-3689
dc.identifier.issn0301-4738
dc.identifier.placeIndiaen_US
dc.identifier.urihttps://imsear.searo.who.int/handle/123456789/224852
dc.languageenen_US
dc.publisherAll India Ophthalmological Societyen_US
dc.relation.issuenumber2en_US
dc.relation.volume71en_US
dc.source.urihttps://doi.org/10.4103/ijo.IJO_1670_22en_US
dc.subjectCerebral visual impairmenten_US
dc.subjectCOVID?19en_US
dc.subjectIndiaen_US
dc.subjectparental perceptionen_US
dc.subjectTele?rehabilitationen_US
dc.subjectVirtual focus group discussionen_US
dc.titleParental perception of facilitators and barriers to activity and participation in an integrated tele-rehabilitation model for children with cerebral visual impairment in South India – A virtual focus group discussion studyen_US
dc.typeJournal Articleen_US
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