Awareness about thalassemia and feasibility of cascade screening in families of thalassemia major patients

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dc.contributor.authorSingh, Leehaen_US
dc.contributor.authorWade, Minalen_US
dc.contributor.authorAgrawal, Mukeshen_US
dc.date.accessioned2020-09-24T07:45:51Z
dc.date.available2020-09-24T07:45:51Z
dc.date.issued2019-11
dc.description.abstractBackground: The main objective of this study is to assess knowledge and attitude of parents & extended relatives of children diagnosed with Thalassemia major and to evaluate feasibility of screening of extended families for thalassemia trait by correlating their willingness to get screened with actual screening.Methods: This was a cross sectional type of descriptive' analytical study, conducted at the thalassemia day care center at a tertiary care teaching hospital in western India among 230 study population using a pre-designed and pre-validated structured questionnaire.Results: We found the overall knowledge score of parents about thalassemia was significantly better than relatives. About 95.83% of parents and only 31.86% of the relatives amongst the study population had adequate knowledge. Majority of study population (84.61% relatives and 100% parents) had positive attitude. The significant contributing factors for knowledge and attitude towards thalassemia were age, marital status, education level, religion and per capita monthly income. 2% relatives agreed to get themselves screened for thalassemia status out of which only 20% got themselves screened.Conclusions: This study has identified key areas which need to be highlighted and emphasized in public awareness campaigns for thalassemia screening in India.en_US
dc.identifier.affiliationsDepartment of Pediatrics, Seth G. S. Medical College and KEM Hospital, Mumbai, Maharashtra, Indiaen_US
dc.identifier.citationSingh Leeha, Wade Minal, Agrawal Mukesh. Awareness about thalassemia and feasibility of cascade screening in families of thalassemia major patients. International Journal of Contemporary Pediatrics. 2019 Nov; 6(6): 2526-2531en_US
dc.identifier.issn2349-3283
dc.identifier.issn2349-3291
dc.identifier.placeIndiaen_US
dc.identifier.urihttps://imsear.searo.who.int/handle/123456789/204329
dc.languageenen_US
dc.publisherMedip Academyen_US
dc.relation.issuenumber6en_US
dc.relation.volume6en_US
dc.source.urihttps://dx.doi.org/10.18203/2349-3291.ijcp20194582en_US
dc.subjectAttitudeen_US
dc.subjectAwarenessen_US
dc.subjectKnowledgeen_US
dc.subjectParentsen_US
dc.subjectRelativesen_US
dc.subjectScreeningen_US
dc.subjectThalassemiaen_US
dc.titleAwareness about thalassemia and feasibility of cascade screening in families of thalassemia major patientsen_US
dc.typeJournal Articleen_US
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