Perceived burden and treatment expectations of family members of adult individuals with Intellectual Disability
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Date
2022-09
Journal Title
Journal ISSN
Volume Title
Publisher
Desousa Foundation
Abstract
Background: In India, most individuals with an intellectual disability live with their families. The present study examines the perceived burden of family members, treatment expectations, and awareness of disability benefits for adult individuals with Intellectual Disability (ID). Methodology: A sample of 50 individuals registered in an Adult Psychiatry Unit was referred for intelligence assessment. The assessment was done using standardized psychological tests. Data was gathered using a semi-structured interview schedule during counselling the participants’ family members. Data obtained was examined using descriptive statistics. Results: Average age of participants was 27.5 years, and the majority 64%, were male patients. Comorbid conditions such as seizure disorder, psychosis and obsessive-compulsive disorder (OCD) were present in 46 % of the sample. Caregivers were primarily parents, and a higher level of family burden was due to behavioural problems. Half (50 %) of the sample was unaware of disability benefits. Conclusion: Findings indicate the need to address caregiver burden and plan psychosocial rehabilitation and improve awareness about disability benefits and its implications more consistently across India.
Description
Keywords
Intellectual disability, caregiver burden, disability benefits, tertiary care hospital
Citation
Aier Alemsungla, Satyanarayana Veena A, Suman L.N.. Perceived burden and treatment expectations of family members of adult individuals with Intellectual Disability. Indian Journal of Mental Health. 2022 Sep; 9(3): 296-301